Navigating the Spectrum of VHL Care: Advances, Genetics, and Patient Perspectives
Expert Perspectives · Keira Smith · 2025-05-08
In celebration of VHL Awareness Month, Oncology Data Advisor® and the VHL Alliance teamed up to host an inspiring conversation featuring a renowned medical oncologist, an expert genetic counselor, and a passionate patient advocate. Together, they dive into the latest breakthroughs in von Hippel-Lindau (VHL) disease care, including cutting-edge treatments like belzutifan, practical tips for managing side effects, the critical role of genetic counseling and testing, and powerful firsthand insights from the patient community. Watch the recording now to gain expert knowledge, hear real stories, and discover hope and progress in VHL care!