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    Rare Disease Day: Generating Change Through Patient-Centered Care

    Expert Perspectives · Keira Smith · 2025-03-17

    On February 28, Oncology Data Advisor hosted a live panel discussion in honor of Rare Disease Day. Members of the Editorial Board and Fellows Forum, including Cancer Support Community, spotlighted the rare diseases that they see in their practice and advocacy work—including uveal melanoma, plasma cell leukemia, pancreatic neuroendocrine tumor, and myelodysplastic syndromes— and delved into challenges, advances, and future directions. In addition, they highlighted the patient perspective and discussed the unique experience of treating rare diseases during residency and fellowship. Watch this insightful discussion to gain awareness of the rare diseases affecting patients throughout the world and the latest advances that are improving their care!

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